Wednesday, November 21, 2018

Forty-Two, with Infinite Majesty and Calm

Post-retirement, I have found myself adrift in the sea of self-identity. I was "Christine Wy, Student!" Or "Christine Wy, Archivist!" for many years, and now, having retired from health complications at the age of 37, I look at 42 and try to understand "the answer to the ultimate question of life, the universe, and everything." And you know. Despite being 42. I can't find it. 

I've begun to live in a morass of reflected glory, specifically, via my highly accomplished husband. I revel in the twists and turns he reveals to me about his research and feel so enmeshed in the process that it has begun to feel as if it were me, as well, preparing his research.

And then he goes away. 

Then the article is written, the book published, and I forget to read it. The presentation at the conference is a success, and I'm so amped for him, I forget I really wasn't there participating at all. It's so much a part of me now, that if somehow what I "do" comes up, it turns into "Oh I'm disabled, but let me tell you about my husband!"

And it's become soul crushing. 

I do not want to be, "Christine Wy, Disabled!" How much does that suck? How unrelatable, how miserable, how small and insignificant? How -pathetic-??

In my brightest moments, I think of myself as "Christine Wy, Health Advocacy Trailblazer!" but it's not something I know how to relate to anyone who doesn't meet me on Facebook, who meets me "on the street," as it were (As if I ever leave the house!). 

I feel horrendous guilt that I don't volunteer with health or political organizations, even just online. Truly a magnificent weight is upon my shoulders on this one. 

But Facebook. On Facebook I'm a rockstar of health transparency advocacy. I talk about chronic pain, chronic illness, and especially mental health, a subject I've tried to skirt in this blog. Ok, all subjects I've tried to skirt, and admittedly, the reason I didn't talk about it on here is fear. 

A lot of people have found my blog since moving to Florida whom I have been very uncomfortable with reading my posts. It really gnawed at me. At one point I was looking for more gainful employment, and more than one interviewer told me, "By the way, your blog is hilarious!" 

Oh. Mah. Gawd. Exactly one of my greatest fears when I set out on this "fun" little adventure, future employers. But, I'm a librarian, and librarians find everything, so honestly I wasn't -too- surprised, more like a little miffed that I wasn't obscure enough. 

So yeah, health? Icksnay on the bipolarsnay!! 

I think I've reached a point where transparency is of utmost importance to me, because here's the thing.... The direct messages. 

I get direct messages from people I've met all over the globe who tell me, "I wish I could be brave like you and talk about my mental health!" 

You know what? I don't think I'm all that brave. I think I'm more defiant. I feel like mental health stigma is a battle that must be fought, and if it has to be me who leads the charge in my little corner of the Internet, then Viva la Revolucion! "Onward marching broken soldiers!" (You have to sing that.) 

But I can't hold onto the "defiant" in me, not in real life. I hold onto my husband, desperately, like a life raft connecting me to my former life, something tumultuously unstable but that I hope will hold me up in the passage from one continent to another. 

But where is this new continent? It must be online, because bluntly I don't fit in in Florida, and my number of local friends I can count on only a few fingers whom I'm physically able to hang out with. I was always popular as an adult. Until Florida. So I just don't understand. I'm really not sure why no one here seems to like me, or at best only admires me from afar, ironically via asking my husband about me versus getting my actual phone number.

I'm pausing now to say that I feel like I got off track, but that it felt good getting that out of my system. Talk about "Things that Still Make Me Stabby after Ten Years!" And I mean that, earnestly. It hurts to become unpopular when you're used to being in the soirĂ©e's inner circle.  

Back on track!

I guess all that's really left is to tie this menagerie of Fresh Back to Blogging spew of nonsense up, so here, let me attempt that....

I propose my own answer to the "ultimate question:" find my defiant. 

Somewhere in me is that bad mama jama who wants to break down the walls of silence surrounding mental health. I'm so open and free with anyone and everyone about my life's journey through chronic health conditions, and that's fuckin hella balls to the wall kickass to me, so why isn't that my identity? 



"Christine Wy, Bad Mama Jama," here to bust down your stereotypes of what cuckoo for Cocoa Puffs looks like, sounds like, and feels like. Stand back. It's on. 

Sunday, November 18, 2018

I Went to California and All I Got Was this Lousy Head Cold!

I could never be able to afford to do this normally, post-disability, but I had some airline flight credit I had to use before it expired, so I took off to see bestie C.S. (not Lewis).

What ended up being the most exotic thing I did was going to a "sesh." I loathe that term, don't even know what it's shorthand for, and it just makes me feel like a poseur to say it since I'm not part of that culture.

In case you don't know what a "sesh" is, it's basically an only quasi-legal farmer's market for shit tons of weed.* Like Shit. Tons. Of. Weed.. I've never seen anything remotely like this. Nothing. Growers with the equivalent of multiple small garbage bags full of ounces and ounces of cannabis, in multiple strains, and as I observed, usually three strains per booth. It was pretty ridiculous.

To give you an idea of the scope of this scenario, I can't becount the number of tables set up by the growers. The two rows of growers snaked all over a large property, and was just crazy big to my virgin eyes. There had to have been 40-50 booths, I really don't know, but it was crazy I tell you, crazy.

I didn't buy anything, even though I had been on the lookout for a nice CBD infusion topical cream for my aching hands, but I was so overwhelmed, I had no idea from whom to buy! There is a guy I regret not buying from, actually, but, doubt I can do anything about that now!

The problem was that there was some family drama, and then to saddle up the dramallama,  C.S.'s child brought home a head cold.....

Oh Boy!! Omg I wanted to sterilize everythinggggg, but how could I? It wasn't my house, and how do you tell a child in their own home, "DON'T TOUCH THAT OR YOU'LL KILL ME!!"

And it's true. I am immunosuppressed, so my odds versus germs are basically bunk, but, I just had to strap in for the inevitable! And hoo-doggy, did that inevitable ever come!!

I was there from a Friday night to a Wednesday morning. I woke up in th middle of the night Sunday, and there, I felt it, the tickle in my nose and throat that made me say "HELLO ILLNESS MY OLD FRIEND!! Thanks for showing up on vacay!!" Monday morning brought me to full misery status.

C.S. had to work, so it gave me bonding time with his girlfriend, and plenty of time to rest in bed, rest that I desperately needed to accrue for that evil, high altitude journey home.... And boy-howdy did that suck! In the immortal words of Tod Flanders, "Ow! My freaking ears!"

I wish I were at leisure to talk about what happened there in toto, because it was deep, and it made me feel like I had purpose to be there at that moment, but it is too personal and not my journey to share. Suffice it to say I inserted myself into a lot of complicated storylines and gave plenty of unsolicited advice, but, that's pretty much standard for one of my vacations!

Despite the mayhem, I had a dreamscape of a time--and I hope to go back under less germy circumstances!

Love to C., J., and little petri dish A.,
Your Eternal Buttinsky,
 XOXtine

*PLEASE don't forget California is a legal cannabis state!

Hi! I'm -trying- to come back!

You know, I just wrote this awesome blog post about my feeeeelings and stuff and the emotional journey I've been on to reach a point in my life I feel like I -might- be able to write again, only, shit happened, and it published in a wrong, dead, never even used blog instead of here because of Google taking ownership since I created this blog. I'm a little annoyed.....

Lemme try to recap:

I went away because I was so depressed about how shitty my health is, which it truly is, but as much as that's the reason, it's really the beginning of the avalanche of reasons.

I felt like I was stuck in a trap of CONSTANTLY whining about my health, and it only reinforced my depression, making me feel even worse mentally and physically. 

I'm pretty fucking open about being Bipolar 2, and I have a host of physical ailments that are boring (bipolar is wayyyy more interesting, believe me, just ask my long suffering husband! ;) ), so admitting I was clinically depressed for yearssssss is no big deal to me. I hope you can deal with it too, because I'm sure mental health stories will come up.

But here's the thing, here's why I feel like I might be able to write: I'm happy again. At least sort of, at least as happy as a Major Depressive Disorder Bipolar 2 chica can be! Between med changes and forcing myself to learn to live with my health and not be oppressed by it, I feel loads better, loads more in control of where my brain goes, and loads happier.

It's been amazing to recover this part of myself, I truly hope I can keep my blog running again. I miss you all and your hilarious feedback, so yeah, please stick around and we'll see what happens!

Thank You,
Christine Wy
Unkillable Cactus Killer